Thursday, February 26, 2015

Rough Week or so, for Liver and Lungs

A whole lot of coughing.  It is thought to be liver related...Not sure how that works.  Each day there is more coughing and now, it has become somewhat productive.  Generally very dry, so I am thinking it is from my sinus drainage.  I take 12 Hour Allegra for it. Sometimes it works pretty good and sometimes not.  Thank goodness for the air scrubber.  It does help.


Liver is causing a lot of pain.  Most of the time I try my best to ignore it... there are times I must take an RX for it---but, only at night.  I went in for my blood draw and was advised that my blood and platelets were too low for chemo and neulasta shot this week.  We will try again Monday and see where the counts are.


While dealing with this little set back, I had committed to going full Solar...so, this is the week that the panels are being placed on my roof...kind of takes my mind of my own health issues.  Finally got my Prius a "trickle down" charger, because I am down more than up and was getting tired of having Toyota come to recharge it.....now, no problem. 


Several of my friends comes by periodically, to bring a supper for me and my kid... I am so grateful for them keeping me in the loop. 


I am guessing I need to do more research on my liver, to find out what is going on.  :)  Later...



Sunday, February 15, 2015

17 days since Liver Diagnosis

Terrible cough and little energy.  Not driving again.  Still trying to figure things out.  I have done more research and found coughing is found in most of the blogs and information.  It is hard to just sit strait up...or back in a chair.  I keep huge amounts of cough drops around me along with fluids. I sleep on my left side because I can't sleep in any other position....too much coughing.  No coughing on my left side, which allows me to get a pretty good nights sleep.


What independence I had is now pretty much restricted.  I am awaiting the Dr apt in two weeks.  I have another round of blood draw and chemo this week, along with next week.  I have my nephew driving me, again.  I can still do some basic cooking and that part is good.  I now rely on some deliveries.  Good news is, I can still eat what I want....just not in large quantities. 


Had a great visit with my sister and nephew...I know I wasn't supposed to talk so much (causes mucus in my throat)...I even ordered pizza in... So much to say-it was her husband who passed from sclc which metastasized about every where, back in '87.


At least for the time being, I still have my brain and can kind of engineer what is going on around me.  This has been so hard on Mim...She has good days and bad days wondering what is coming next.  Thank goodness we have a dog.  It helps.


So very glad we got to make the trip to CA a couple of weeks ago.  Who knows, maybe a very smart scientist is working on a cure for me... Mim is going to make breakfast this morning...  :)

Friday, February 6, 2015

87 Days and still breathing.

I did see the Radiologist on the 4th.  He was not happy to hear the new diagnosis....But, was glad to see that I am still doing well. As, he puts it, "I am his Star.


I drove to Palm Springs (Indio) to see Tony Bennett 1/30/2015.  Was very tired, but OK.  Next day my lady friend drove my car to her place... We, took a short bypass to Sam's...and then I did nothing for the rest of the day. Sunday we made preparations for the Super Bowl, food... And, got to chatter like we used to.


Monday morning, Mim and I headed back to AZ.  I didn't make a speedy trip of it...but, made good time.  Guess I am much stronger than I thought.  There were no problems... Just tired and slept well.


I am learning there are really, really good days...and some ho-hum days.  None bad.  I did learn something...I forgot to renew my military ID and made a run to Pass and ID.  Found out, the chemo pretty much destroyed my fingerprints....grrrr....  Good thing was, I had "other ID" to renew me.


I have a blood draw Monday and Chemo Tuesday... We will see how this new round treats me.  For now, I will be going in with the same schedule of blood and chemo, for three weeks on and one off, until the Dr.'s determine how I am responding.


Very curious life, for me.  Later...